Impact of Caregiving Burden on the Mental Health of Caregivers: A Study of Individuals Caring for Chronically Ill Patients

Authors

  • Musfirah Mazhar MPhil Scholar, Department of Applied Psychology, School of Professional Psychology, University of Management & Technology, Lahore, Pakistan. https://orcid.org/0009-0001-6087-0628
  • Haziq Mahmood Assistant Professor, Department of Applied Psychology, School of Professional Psychology, University of Management & Technology, Lahore, Pakistan.
  • Martina Speck PhD Scholar, Department of Experimental Psychology, University of Ottawa, Canada. https://orcid.org/0000-0003-0116-9783

DOI:

https://doi.org/10.52053/jpap.v5i2.269

Keywords:

Caregiver, Caregiving Burden, Caretaker, Chronic Sickness, Mental Health, Psychological Distress

Abstract

The present research aims to investigate the relationship between the caregiving burden and its impact on the mental health of caregivers of chronically sick patients. It was hypothesized that the caregiving burden would be positively associated with higher levels of depression, anxiety, and stress among caregivers of chronically sick patients; and caregiving burden would significantly predict the psychological distress (depression, anxiety, stress) in caregivers of chronically sick patients. A sample of 220 caregivers (n=220) was selected conveniently which comprised of 102 males and 118 females selected from the different hospitals. The study employed a correlational research design to collect data, using two standardized scales, the Depression, Anxiety, and Stress Scale-21 (DASS-21) and Zarit Burden Interview. The data were analyzed by using SPSS to investigate the relationship between the caregiving burden and the caregivers' mental health. The findings showed a significant relationship between caregiving burden and increased psychological distress. This implies that higher caregiving burden leads to higher psychological distress. The findings emphasize the importance of proper interventions and support facilities for caregivers. The study adds to the existing knowledge by addressing the impact of the caregiving burden. Additional research is needed to investigate the potential mediator or moderators of the association between the burden and the mental health outcomes, thereby improving our understanding of the intricacies of caregiving experiences. 

References

Ali, M. A., ALkhamees, A. A., Hori, H., Kim, Y., & Kunugi, H. (2021). The depression anxiety stress scale 21: development and validation of the depression anxiety stress scale 8-item in psychiatric patients and the general public for easier mental health measurement in a post covid-19 world. International Journal of Environmental Research and Public Health, 18(19),10142.

Alizadeh, M., Chehrzad, M. M., Mirzaee, M., & Leyli, E. K. N. (2019). Caregiver burden and related factors in parents of children with Thalassemia. Journal of Advanced Pharmacy Education & Research|, 9(S2), 35-39.

Ayalew, M., Workicho, A., Tesfaye, E., Hailesilasie, H., & Abera, M. (2019). Burden among caregivers of people with mental illness at Jimma University Medical Center, Southwest Ethiopia: a cross-sectional study. Annals of General Psychiatry, 18(1), 1-11.

Balbim, G. M., Maldonado, A. M., Early, A., Steinman, L., Harkins, K., & Marquez, D. X. (2020). Evaluation of public health messages promoting early detection of dementia among adult latinos with a living older adult parental figure. Hispanic Health Care International, 18(3), 163-173.

Bekdemir, A., & Ilhan, N. E. S. R. ?. N. (2019). Predictors of caregiver burden in caregivers of bedridden patients. The Journal of Nursing Research, 27(3), e24.

Chikhradze, N., Knecht, C., & Metzing, S. (2017). Young careers: growing up with chronic illness in the family-a systematic review 2007-2017. Journal of Compassionate Health Care, 4(1), 1-16.

Cooper, R. A. (2021). “I am a caregiver”: Sense-making and identity construction through online caregiving narratives. Journal of Family Communication, 21(2), 77-89.

Faronbi, J. O., Faronbi, G. O., Ayamolowo, S. J., & Olaogun, A. A. (2019). Caring for the seniors with chronic illness: The lived experience of caregivers of older adults. Archives of Gerontology and Geriatrics, 82, 8-14.

Gouin, J. P., Da Estrela, C., Desmarais, K., & Barker, E. T. (2016). The impact of formal and informal support on health in the context of caregiving stress. Family Relations, 65(1), 191-206.

Gratao, A. C. M., Brigola, A. G., Ottaviani, A. C., Souza, E. N., Rossetti, E. S., De, O., Pavarini, S. C. I., Luchesi, B. M., & Terassi, M. (2019). Brief version of zarit burden interview (zbi) for burden assessment in older caregivers. Dementia E Neuropsychologia, 13, 122-129.

Gupta, S., Isherwood, G., Jones, K., Van, Impe K. (2015). Assessing health status in informal schizophrenia caregivers compared with health status in non-caregivers and caregivers of other conditions. BMC Psychiatry, 15, 1-11.

Hu, P., Yang, Q., Kong, L., Hu, L., & Zeng, L. (2018). Relationship between the anxiety/depression and care burden of the major caregiver of stroke patients. Medicine, 97(40), 1-6.

Isac, C., Lee, P., & Arulappan, J. (2021). Older adults with chronic illness–caregiver burden in the Asian context: a systematic review. Patient Education and Counseling, 104(12), 2912-2921.

Jane, O. A., Olatunji, A., Bamiso, M. A., Kola, O. J., Ayodele, O. J., & Ideraoluwa, B. O. (2019). Burden of care and psychological distress in primary caregivers of patients with type-2 diabetes mellitus in a tertiary hospital in Nigeria. Ethiopian Journal of Health Sciences, 29(6), 697-708.

Javalkar, K., Rak, E., Phillips, A., Haberman, C., Ferris, M., & Van Tilburg, M. (2017). Predictors of caregiver burden among mothers of children with chronic conditions. Children, 4(5), 39.

Kuhlen, R., Schick, J., Scriba, P., Schmithausen, D., & Winklmair, C. (2020). he effects of the COVID-19 pandemic and lockdown on routine hospital care for other illnesses. Deutsches Ärzteblatt International, 117(27-28), 488.

Lambert, S. D., Bowe, S. J., Livingston, P. M., Heckel, L., Cook, S., K, P., & Orellana, L. (2017). Impact of informal caregiving on older adults’ physical and mental health in low-income and middle-income countries: a cross-sectional, secondary analysis based on the WHO’s Study on global AGEing and adult health (SAGE). BMJ Open, 7(11), e017236.

Lee, J. J., Tsang, W. N., Yang, S. C., Kwok, J.Y. Y., V, W., & Lau, K. K. (2021). Qualitative study of Chinese stroke caregivers’ caregiving experience during the COVID-19 pandemic. Stroke, 52(4), 1407-1414.

Liu, S., Li, C., Shi, Z., Zhou, Y., Liu, S., & Ji, Y. (2017). Caregiver burden and prevalence of depression, anxiety and sleep disturbances in Alzheimer's disease caregivers in China. Journal of Clinical Nursing, 26(9-10), 1921-1300.

Lou, Q., Liu, S., Huo, Y. R., Liu, M., & Ji, Y. (2015). Comprehensive analysis of patient and caregiver predictors for caregiver burden, anxiety and depression in Alzheimer's disease. Journal of Clinical Nursing, 24(17-18), 2668-2678.

Mamom, J., & Daovisan, H. (2022). Listening to caregivers’ voices: the informal family caregiver burden of caring for chronically ill bedridden elderly patients. International Journal of Environmental Research and Public Health, 19(1), 567.

Perry, M. A., Mulligan, H., & Smith, C. (2017). How do professional caregivers perceive their health and well-being? International Journal of Workplace Health Management, 10(6), 434-449.

Ploeg, J., Markle-Reid, M., Valaitis, R., McAiney, C., Duggleby, W., Bartholomew, A., & Sherifali, D. (2017). Web-based interventions to improve mental health, general caregiving outcomes, and general health for informal caregivers of adults with chronic conditions living in the community: rapid evidence review. Journal of Medical Internet Research, 19(7), e263.

Ribe, J. M., Salamero, M., Pérez-Testor, C., Mercadal, J., Aguilera, C., & Cleris, M. (2018). Quality of life in family caregivers of schizophrenia patients in Spain: caregiver characteristics, caregiving burden, family functioning, and social and professional support. International Journal of Psychiatry in Clinical Practice, 22(1), 25-33.

Ruksakulpiwat, S., Zhou, W., Phianhasin, L., Benjasirisan, C., Fan, Y., Su, T., & Chiaranai, C. (2022). The experience of caregivers of chronically ill patients during the COVID-19: A Systematic Revie. Chronic Illness, 18(3), 488-502.

Siddiqui, S., & Khalid, J. (2019). Determining the caregivers’ burden in caregivers of patients with mental illness. Pakistan Journal of Medical Sciences, 35(5), 1329.

Souza, A. L. R., Guimara?es, R. A., de Arau?jo Vilela, D., de Assis, R. M., de Almeida Cavalcante Oliveira, L. M., Souza, M. R., Nogueira, D. J., & Barbosa, M. A. (2017). Factors associated with the burden of family caregivers of patients with mental disorders: a cross-sectional study. BMC Psychiatry, 17, 1-10.

Stanley, S., Balakrishnan, S., & Ilangovan, S. (2017). Psychological distress, perceived burden and quality of life in caregivers of persons with schizophrenia. Journal of Mental Health, 26(2), 134-141.

Sullivan, A. B., & Miller, D. (2015). Who is taking care of the caregiver? Journal of Patient Experience, 2(1), 7-12.

Von Kardorff, E., Soltaninejad, A., Kamali, M., & Eslami Shahrbabaki, M. (2016). Family caregiver burden in mental illnesses: The case of affective disorders and schizophrenia–a qualitative exploratory study. Nordic Journal of Psychiatry, 70(4), 248-254.

Yakubu, Y. A., & Schutte, D. W. (2018). Caregiver attributes and socio-demographic determinants of caregiving burden in selected low-income communities in cape town. South Africa. Journal of Compassionate Health Care, 5(1), 1-10.

Yazici, E., Karabulut, U., Yildiz, M., Teke?, S. B., Çakir, ?. N. A. N., & Turgut, C. (2016). Burden on caregivers of patients with schizophrenia and related factors. Nöro Psikiyatri Ar?ivi, 53(2), 96.

Zarit, S. H., & Savla, J. (2016). Caregivers and stress. In Stress: Concepts, Cognition, Emotion, and Behavior (pp. 339-344). Academic Press.

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Published

2024-06-30

How to Cite

Mazhar, M., Mahmood, H., & Speck, M. (2024). Impact of Caregiving Burden on the Mental Health of Caregivers: A Study of Individuals Caring for Chronically Ill Patients. Journal of Professional & Applied Psychology, 5(2), 144–157. https://doi.org/10.52053/jpap.v5i2.269